When you assume the role of the health care agent of a loved one, you make crucial medical decisions for that person. If your loved one becomes incapacitated and cannot communicate with health care providers, you are responsible for ensuring health care providers respect your loved one's preferences for care.
If you are a health care agent, your role is to protect your loved one's interests when he or she is vulnerable. Health care agents have an essential, yet challenging role, as medical decisions can significantly impact patient outcomes.
What Is a Health Care Proxy?
A health care proxy (also called a medical power of attorney) is a document that appoints another person to make health care decisions for the principal. The health care agent is the person appointed under the health care proxy (or medical power of attorney). Other potential decision-makers include guardians authorized by the court, or legal surrogates. Legal surrogates are close family members called upon to make decisions when the patient has no agent or guardian.
Understanding the Role
The role of health care agent includes:
- Reviewing and staying informed about your loved one's medical information.
- Consulting with the health care team and asking questions about your loved one's status and treatment.
- Consenting to and declining medical tests and treatments for your loved one.
- Deciding where your loved one receives care, including hospitals, assisted living, and nursing care.
- Facilitating communication between your loved one and doctors and nurses to the extent that your loved one can communicate.
- Making decisions involving your loved one's finances and insurance.
Depending on the circumstances, you might know in advance that you will serve as a health care agent, or you might take on the role unexpectedly. Should you have time to prepare for your role, keep several things in mind:
- Talk with the person you represent. Understanding his or her values, beliefs, and preferences regarding medical treatment will help you make decisions consistent with his or her wishes.
- Become familiar with your loved one's medical history and health care team.
- Review relevant legal documents. Your loved one may have a power of attorney designating you as the health care agent and a living will or advance directive describing his or her end-of-life wishes.
Communicating With the Person You're Representing
When you assume the role of surrogate decision-maker, it is crucial to understand the patient's wishes and values. Since you do not know how his or her condition will change, it is a good idea to have conversations about your loved one's medical preferences early and often.
Consider speaking with other close family members if your loved one cannot communicate. Although you are the final decision maker, those close to the patient may be able to provide additional information.
Making Health Care Decisions as a Medical Proxy
When you make medical decisions for an individual, consider taking the following steps.
- Understand the medical facts. Speak to health care providers and review records to get a complete picture. Good practices include bringing a list of questions and taking notes when you meet with the doctor as well as compiling a list of all medications.
- Assess the options. Ask health care providers about the risks and potential benefits of each choice.
- Identify what the patient would want. Your role is to follow the individual's wishes, even if they differ from what you would choose for yourself. Should conflicts between family members and health care providers arise, make choices consistent with the patient's wishes.
- If you cannot determine what the patient would want, do what is in the patient's best interests.
End-of-Life Decision-Making by Proxy
Health care agents are often called upon to make end-of-life decisions. For instance, doctors might ask you to decide whether to prolong your loved one's life or allow him or her to pass naturally. You might be responsible for consenting on the patient's behalf to medical research or experimental treatments.
As the health care agent, you have an essential role in the decision-making process. When you make end-of-life decisions for the patient, following the patient's wishes is paramount.
Refer to any advance directives your loved one may have. Perhaps he or she had a living will expressing his or her desire to either prolong life or provide noninvasive care to keep him or her comfortable as he or she passes. The health care power of attorney might also include end-of-life and funeral instructions.
Sometimes, you might have to decide whether the patient participates in medical research. It is essential to understand the purpose of the study as well as the risks and potential benefits. Research participation is optional. You can decline if it would not benefit your loved one.
Self-Care for Health Care Agents
Being a health care decision-maker can be stressful, and you could experience grief as the patient's health declines. Just as you care for your loved one, you must care for yourself to avoid burning out.
Strategies for coping with stress and emotions that may arise in your role as a health care proxy include getting enough sleep, exercising, practicing meditation, and seeking mental health counseling.
Seek Additional Support
Consulting with a professional can also help you understand your role. You may benefit from checking out the American Bar Association Commission on Law and Aging's "how-to” guide on serving as a health care proxy. Consider contacting a geriatric care manager and your estate planning attorney for additional support.
There are no comments for this post. Be the first and Add your Comment below.
Leave a Comment